The CIPF has organized the 4th conference of female researchers on rare diseases (February 22, 2019), promoted by Carmen Espinós. This year the focus was on clinical trials for patients who suffer from PKAN (PANK2 associated neurodegeneration), retinosis pigmentaria, and fragile X syndrome. These talks were presented by M. José Martí (H. Clínic, Barcelona), Regina Rodrigo (H. U. i P. La Fe, Valencia) and Yolanda de Diego (IBIMA, Málaga). Regarding research focused on genetics and clinical aspects, the speakers were Inmaculada Calvo (H. U. i P. La Fe, Valencia), Lídia González-Quereda (H. Santa Creu i Sant Pau, Barcelona), and Anabel Teruel (H. U. Clínic, Valencia). They talked about autoimmune disorders in children, genetics of neuromuscular diseases, and cancer. Moreover, the associations of patients with fibromyalgia and toxic oil syndrome thanks to the collaboration of María López-Matallana and Carmen Cortés.
The International Day of Women and Girls in Science, celebrated each year on 11 February, was adopted by the United Nations General Assembly to promote full and equal access to and participation in science for women and girls. We must make visible women researchers to students because they are the future and they need to know that science can be carried out by women. Carmen Espinós gave a class in Riu Túria High School focused on research performed by Spanish women.